Scienza Partecipata: online i primi progetti per migliorare la qualità di vita delle persone con malattie rare

No Comments 641 Views0


Le buone pratiche rappresentano una risorsa importante per sopperire la mancanza di disponibilità. Nel caso delle malattie rare, possono divenire determinanti nella messa a punto di soluzioni e strumenti utili ad agevolare la vita quotidiana.

Per questo, l’Istituto Superiore di Sanità e il Ministero della Salute hanno lanciato il BandoScienza partecipata per il miglioramento della qualità di vita delle persone con malattie rare.

Il progetto, coordinato dal Centro Nazionale Malattie Rare (CNMR), è rivolto a cittadini, scuole, associazioni, ricercatori e istituzioni, per contribuire tutti insieme a migliorare la vita delle persone e delle loro famiglie, attraverso la proposta e la condivisione di strumenti, idee ed esperienze.

Le prime idee e proposte concrete, utili per affrontare le piccole e grandi difficoltà delle sfide quotidiane che si trova a dover affrontare una persona con malattia rara (circa 2 milioni di persone in Italia, di cui il 70% in età pediatrica) sono già online (Progetti | #rarinsieme (scienzapartecipata.it) e verranno presentati direttamente dagli autori mercoledì 23 novembre dalle 18 alle 19.30 in un webinar dedicato.

Info e prenotazioni: Progetto Scienza Partecipata

Elliott, The Dallas fresh, Found the going tough until late in to fourth quarter. Well later, The NFL leading rusher with the non-stop churning legs buried Pittsburgh. His first landing, A 14 yard dash down the best sideline, This Cowboys up 29 24 Kwon Alexander jersey. Patriots coach Bill Belichick said all three players would be assessed, But chiefly referred to Mayo injury as little bittersweet. Brady is two 300 yard passing games shy of complementing Brett Favre total. It has also been Brady 16th career game with four or more touchdowns and no interceptions. Provide much more competitive than it was out there, Belichick thought. Give to them credit, They did a bit more than we did tonight. We got to do a more satisfactory job, But I not implementing anything away from them reggie nelson jersey. A sixth year NFC snug end, Granted anonymity in order to speak freely regarding the subject, Said that short arming passes or seeking safe haven out of bounds to reduce contact happens the time and someone says they lying. Vikings attacking lineman Jeremiah Sirles calls it smart football. The person in Year 8 or 9, And you running down the part time, But(Seattle Seahawks cover) Kam Chancellor racing at you, What those extra 2 yards investing in a just stepping out of bounds and avoiding a huge collision? Sirles stated.I explain to you this I a black man, As well as, You are sure that, Colin Kaepernick, He not schokohrrutige, Okay? Harrison understood. Cannot determine what I face and what other young black men and black people face or people of color face on an every single[day] Agreement rashad jennings jersey. Birth sister is white, And he was applied and raised by white parents.. I felt it would definitely be a public safety issue we would cancel it, But at this moment I think we be fine for tomorrow custom chiefs jersey. You about to attend the parade, Mayor Walsh said to leave early and have plenty of travel time. Law enforcement will be enforcing this rule devante parker jersey..